Understanding the Crisis
The Problem
Sickle Cell Disease affects millions worldwide. Here's what we're up against.
The Impact
Who Sickle Cell Disease affects and how it changes lives
Living with Uncertainty
Patients face unpredictable pain crises that can strike without warning. Each day brings new challenges: managing symptoms, avoiding triggers, and hoping the next crisis isn't around the corner.
Bearing the Weight
Family members carry immense emotional and physical responsibility. They become nurses, advocates, and emergency responders all at once.
Childhood Interrupted
Kids miss school, birthday parties, and playtime. They learn early that their bodies work differently, often feeling isolated from peers who can't understand their reality.
Disproportionate Impact
SCD predominantly affects people of African, Mediterranean, Middle Eastern, and Indian descent, often in communities with limited healthcare access.
The Scale
Numbers that demand attention
People in the UK living with Sickle Cell Disease, making it the fastest growing genetic condition in Britain.
Annual NHS costs in the UK, largely due to emergency hospital admissions that could be prevented.
Of children in low-income countries don't survive past age 5 due to lack of early diagnosis and care.
Of SCD cases occur in Sub-Saharan Africa, where resources are most limited.
The Funding Gap
While SCD affects more people than cystic fibrosis in the UK, it receives far less research funding and public attention.
The Solution
How SickleSafe is changing the narrative
Prepare Before Crisis
Log your symptoms daily to build a personal health timeline. Spot your triggers, identify patterns, and discuss insights with your clinical team to stay ahead of your condition.
Connect Care Circles
Build a network of family, friends, and healthcare providers who can respond instantly when help is needed.
SOS Emergency
When crisis strikes, slide the SOS button to call 112 immediately. Your Medical ID is ready for first responders, and you can message your Circle of Care directly from the app.
Know Your Patterns
Your daily logs build a personal health record you own. Show your care team your pain trends, hydration history, and medication adherence — all from your device.
"Because no one should face a health crisis alone."
Join SickleSafe